The mission of the Interdisciplinary Minor in Science and Patient Advocacy is to provide undergraduate students with critical skills and understanding of the multifaceted challenges needed to advocate effectively for rare disease patients. The core of patient advocacy is to know disease at the molecular, genetic and clinical levels and use that information to help patients find treatments. This minor in Science and Patient Advocacy provides an integrated framework that will provide students with needed skills to become effective patient opinion leaders who have enormous influences in health outcomes at all levels in our society.
This adjunctive patient advocacy minor provides needed skills to collaborate with stakeholders such as researchers, clinicians, regulators, pharmaceutical companies and patients to bridge the gaps in knowledge exchange and positive health outcomes. It also provides scientific training in advanced knowledge of current and emerging technologies in research and clinical medicine relevant to rare diseases with the goal of providing trainees the scientific proficiency needed to be effective patient advocates of rare disease.