Rare Disease Day Celebration Community Event

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Location: Jordan Hall 101

Saturday, February 4, 2017 | 9am-5pm

Rare Disease Community Event

Jordan Hall 101

9:00-9:15am Welcome, University of Notre Dame Glee Club Rare Disease Fight Song

9:15-9:30am Keynote speaker: The Future of Rare Disease Treatment

9:30-10:30am Emerging Therapies for NKH

10:30-10:45am Coffee Break and Poster Session

10:45-11:45am Update Niemann Pick Type C Disease Clinical Trials

11:45am-12:15pm Caring for Rare Diseases in Primary Care, South Bend and Surrounding Communities

12:15-1:20pm Lunch and Poster Session

1:20-3:15pm Rare Diseases in our Local Community Patient Narratives

3:15-3:30pm Coffee Break

3:30-4:45pm Rare Diseases in our Local Community Patient Narratives

4:45pm Closing Remarks