Annual Rare Disease Patient Advocacy Summit

Location: Downes Ballroom, Corbett Family Hall (View on map )

The Notre Dame Rare Disease Patient Advocacy Summit, hosted in partnership with Dyne Therapeutics and Horizon Therapeutics, aims to increase the awareness of rare and neglected diseases by bringing industry leaders, students, and patient families together through a series of panel discussions and networking opportunities. This year's Summit will take place on Friday, October 13. 

We are excited to be welcoming Notre Dame graduate and three-time women's soccer Olympic gold medalist, Shannon Boxx, as the plenary speaker. A tentative schedule can be viewed here.

Registration is free and open to all. Please click here to register.  A final program will be shared soon. Any questions can be directed to Katrina Conrad, Program Manager (

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